Red Rash with Burning Itch

by Starr
(California )

Red burning itch rash on arm.

Red burning itch rash on arm.

Red burning itch rash on arm.
Red burning itch rash on chest.
Red burning itch rash on chest reappeared different.
Red burning itch rash on face and chest.

I have had this red burning itch rash for over two years. I got it when I was pregnant and it just won't go away! I have provided some pictures to show the rash on my arm and chest areas. My doctors can't figure this rash out and I never seem to get it when I plan a doctor's visit. I have shown pictures to the doctors but I really need some other help. I have nausea and vomiting many times with this rash and I don't know what is causing this. If anyone can help me I would be so thankful!

For treating this red burning and itchy rash, I have tried Benadryl but unfortunately it doesn't work. I tried steroids but the skin rash always reappears. I also have severe joint pain and muscle pain when the rash appears. I do have fibromyalgia but I really don't think it is related to this health condition.

I'm desperate to know what this is. I hope there is somebody out there that can please help me. I am at the end of my rope because this happens every day. I am in and out of the hospital for nausea and vomiting.

I get this rash on my face, my arms, and my chest as you can see in the pictures that I have provided with this post. I am actually having a rash attack right now. I am so sick to my stomach and I hope someone can please help me!

Please leave a comment to this post with any ideas as to what this skin rash condition could be. I would really appreciate any input.

Thanks.

Comments for Red Rash with Burning Itch

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Jul 16, 2016
Same Rash
by: Jessica

Hi Starr!
Did you ever receive a diagnosis for your rash?
I have had the same kind of rash with joint pain for 9 months. None of lab tests returned with a positive result for anything.

Nov 09, 2015
TO Anonymous last post from Nov 5 2015
by: STARR

MINE STARTED DURING PREGNANCY AND HAS NOT GONE AWAY. I HAD HG DURING PREGNANCY. IS IT HOT TO THE TOUCH? IF YOU SCRATCH IT, DOES IT APPEARS IN OTHER AREAS? SAME HERE. I HAVE OTHER SYMPTOMS WITH IT LIKE JOINT AND MUSCLE PAIN. ARE YOU SICK AT 35 WEEKS WITH NAUSEA AND VOMITING OR ANY OTHER ISSUES? I BELIEVE IT IS SOME TYPE OF MASS CELL ACTIVATION DISORDER. I HAVE HAD A MILLION TESTS AND CLUELESS DOCTORS BUT I BELIEVE OUR BODIES ARE MAKING TOO MANY MASS CELLS THAT CAUSE THE FLUSHING. TRY TAKING ZANTAC AND ZYRTEC AROUND THE CLOCK WHEN YOU ARE NOT PREGNANT. THOSE ARE H1 AND H2 BLOCKERS THAT HELP STABILIZE THE MASS CELLS. DO YOU GET JOINT AND MUSCLE PAIN?

PLEASE FEEL FREE TO EMAIL ME. You can Google starrandrews.com and find my contact info because I am not sure if we are allowed to leave it here.

Nov 04, 2015
Red Rash
by: Anonymous

I just starting having this same exact issue. The rash started in the middle of my chest and spread up and underneath my breast. I do not know what it is either. I put some anti-itch cream on it and it made it burn but it did ease the itch. I am 35 weeks pregnant so I am thinking it has to do with pregnancy but I'm not sure. Try to prevent scratching it. Scratching a rash spreads it.

Dec 31, 2014
No Clue Yet
by: STARR

I do not know what it is yet. I am still looking and no doctor can figure it out. I was hopeful it was what the other person said about Stills but my Rheumatologist said that it was not likely and so I am back to square one. I posted here a few years back in the hope of getting some answers.


Dec 22, 2014
rash
by: chrissy

Oh my God, I have the same rash and it has been just over two years and no one knows what it is. It burns, itches and is very red. Have you found out what it is. If you wouldn't mind letting me know what they found out. I am so stressed about it that I haven't worn makeup in two years. I have it on my face arms chest and a little on my legs. Please let me know.

Dec 16, 2014
THANK YOU TO THE PERSON WHO SAID IT IS STILLS
by: STARR

I WANT TO THANK THE PERSON THAT MADE THE COMMENT THIS COULD BE ADULT STILLS DISEASE. I THINK YOU FOUND OUT WHAT IS WRONG WITH ME. I CAN'T THANK YOU ENOUGH. THESE PAST FOUR YEARS HAVE BEEN A NIGHTMARE. I AM HOPING THAT I CAN GET A DOCTOR AT KAISER TO SEE IF THIS IS WHAT IT IS. THANK YOU FOR GIVING ME HOPE. NOBODY HAS BEEN ABLE TO FIGURE THIS OUT.

Dec 14, 2014
Thank you for your replies. I still have this.
by: STARR

Hi and thank you for answering. The rash joint pain and nausea plus vomiting is still ongoing. No one can figure this out. I have Kaiser as of December 14 2014. This is ongoing. I read about STILLS and have done gluten-free diets and still have it. Thank you for your comments! I am so happy for answers no matter how old the original thread/post is. I will google the STILLS and see if I have the symptoms.

My doctor and rheumatologists have done a lot of tests on me for many different things and they said it's all negative! The only test they did while having a flare up was CRP which was high but they said everything else was normal! But every time I had a flare up my C reactive proteins were very high.

Dec 09, 2014
Gluten Sensitivity
by: Anonymous

Try a gluten free diet for three weeks. Eliminate Gluten completely from your diet and observe the results. The first two weeks eliminate lactose (which is a strong allergen too). If you feel improvement then it is definitely gluten. A friend of mine had the same problem and the same symptoms. The allergy tests came out negative a few times, but she now feels great after eliminating gluten from her daily diet.
Try it, you have nothing to lose. Good luck!

Nov 27, 2014
Red Chest Rash
by: Anonymous

I know this thread is older but have any of your doctors done a blood panel for various autoimmune illnesses? There are many. They also are not always easy to detect and narrow down, as a lot of times people will not test positive unless in an active flare. A lot of times too, they overlap.

Also, there is an illness called Adult Onset Stills disease, which is basically the adult version of idiopathic juvenile arthritis.

Aug 30, 2014
Reply a update help
by: STARR ITS ME MY POST STARR

I hope I answer your questions. I will read up on what you think. I get bad joint muscle or maybe bone pain. The pain with the attacks is unbearable and most of time cycles of nausea and vomiting happen not always but almost always.

Has anyone out there ever seen or know anyone that gets skin flushing where your skin is on fire and hot to the touch like a sunburn but never having been in the sun and clearly not a sunburn. It starts where my body is on fire before it gets red. Afterwards, nausea usually sets in then the red blotching starts spreading up my arm or over my chest and it causes pain in my body where bending my arm or moving it result in muscle and joint pain that feels deep to the bone. It causes a lot of other issues and I have a lot more pictures but I am at my wits end.

I was diagnose with CVS or cyclic vomiting syndrome a long time ago but went into remission untill I got HG while pregnant and this trigger the skin flushing. I thought once my baby was born it would go away but it has only gotten worse and worse. I get so sick and the pain is so unbearable that I feel like someone lit me on fire and added lighter fluid on me. The burning is constant and travels up my body and spreads to my chest, arms, and face.

I can't for the life of me figure out what causes it. I searched Google like crazy all the time but no clue! I have tried trial and error and no luck and I cannot figure this out!

Doctors say they are clueless and it's a mystery to them. I have seen a dermatologist, rheumatologist, G.I. doctor, and my primary doctor and every one of them is clueless even though I have kept extensive journals.

I need help and I am reaching out to Facebook. I have a lot of other symptoms with this condition. Can anyone help me? It has been on going for three and a half years and started when I was pregnant. I thought it was from my Hyperemesis Gravidarum but it's not. I have had a full hysterectomy as of 7/16/14 with everything taken out due to Adenomyosis, so my thought was that it was female issue related.


Aug 30, 2014
Reply two answers FROM STARR WHO POSTED THIS
by: STARR

I've seen a rheumatologist and nobody can figure this out. I have Kaiser and every doctor I see is clueless and tells me I'm a mystery! It's starting now first on the left side. My arm feels so hot as if something is burning me. I have it on my left arm and chest and it starts like I am on fire. It's red like a sunburn and that is what people think it is. When I use to go to class I would have people say that's WERID when you first walked in you were not red and I didn't notice you got a sunburn! Where the red and burning is present, I hurt deep inside to the bone. It's a deep ache and the muscles and joints hurt but I am on fire most of the time. This reaction triggers nausea and sometimes the vomiting is non stop. I can't figure what tiggers it! I thought it was female problems but I had a full hysterectomy four weeks ago. I will be 35 years old on 9/11, but this started when I got pregnant. I wasn't suppose to ever be and I suffer from Hyperemesis Gravidarum severely. I am on a home IV line for fluids around the clock and medications. This started when I was pregnant and hasn't gone away and no doctor can figure it out. I am at my wits end.

Aug 26, 2014
Psoriatic Arthritis?
by: Anonymous

Since you mention severe joint pain with this rash I would suspect it might be Psoriatic Arthritis (PsA). PsA has a scaly red rash with joint pain. The info does not mention itchiness nor burning however.

Also since you have joint pain with this rash I would bypass your GP and get to a rheumatologist asap. If it is PsA, the information on this condition says early treatment is necessary to prevent irreversible joint damage.

Dec 10, 2013
Gluten Intolerance
by: Anonymous

I had a friend of mine who had the same thing. The doctors couldn't figure out what it was. But they finally figured out that he had a gluten intolerance and I believe he had Celiac Disease. I am not doctor but it doesn't hurt to ask.

Sep 14, 2013
Reply to the last post about MEDS IM on
by: STARR

Yes I am on some MEDS! I have ALOT of health issues. I broke my back in 2002 and was paralyzed and in a coma and I had to learn how to walk, talk, read, and write all over again! I am on pain MEDS and muscle relaxers, birth control and blood pressure/heart rate. All the medications I do take, I have been on for years and years and the rash didn't start until I was pregnant two years ago! I had a really rough pregnancy. I had Hyperemesis Gravidarum, which I threw up to the point of dehydration and malnourishment. I was on home healthcare and had an iv picc line in my arm to do fluids at home and anti nausea MEDS though my iv! I was told I have Gastroparesis from the vomiting in my pregnancy and my vomiting sounds like CVS cyclic vomiting Syndrome. I don't have diabetes but have the Gastroparesis so I don't know if that is causing the vomiting.

I saw an allergy doctor and all my testing was normal. I had no food allergies or other and so I am not sure what's going on but my doctors at Kaiser are clueless and don't know either. I am just at my wits end and want to know what this is.

Sep 13, 2013
My Best Guesses
by: Anonymous

Are you taking any medication? Vomit and nausea associated with a huge rash is a sign that you may be allergic to some food or medicine.

Sep 01, 2013
Update
by: Starr

This is still going on a daily basis! I have debilitating joint and muscle pain and nausea that is so bad that it ends up making me vomit so much that by body gets dehydrated. I have to buy so much Pedialyte in order to try and prevent myself from having to go to the hospital emergency room. I am guessing that whatever is going on with me is rare as nobody has provided an answer for me and this really saddens me.

I have a two year old and it has been so hard to care for her with this pain, rash, and vomiting. I do have Fibromyalgia but I do not think this is causing my issues.

I am hoping someone comes across this post and can help.

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